Janet

Penile cancer

Please explain your relationship and briefly explain when your husband was diagnosed with cancer?

Wife, my husband was diagnosed in June 2008.

How did you learn he was unwell? Did it come as a surprise?

He had little ulcers on the head of his penis, they bled when he passed urine.

As women we are very conscious of the importance of regular breast checks and some of the signs to look out for. Do you think you were sufficiently aware of the signs and symptoms of male cancer?

No

How did you both feel when you were facing a possible diagnosis of cancer?

Very upset and confused.

When someone is undergoing a series of tests , a diagnosis, surgery or a gruelling course of treatment it can be hard to know what to do, how to help or be supportive. How did you manage?

Just took each day at a time and learn to cope with things as they came up.

Did you find it easy to talk to family and friends about the experience? Did you find people supportive or did some people avoid discussing what was happening?

We did not really talk about it.

How do you think family members and friends can help?

By being supportive.

Is there any further support you personally would like to be offered from the NHS (at the time, now or in the future)?

More information.

What advice would you give to other women who are facing a similar experience / diagnosis of cancer?

Find out about treatment and if its terminal so you know how you can live both of your lives to the best.

What does the future hold?

I don’t know, it’s like living in a dream it feels unreal. You live from day to day.

Please leave any other comments you would like to share with us.

I am so glad I got in touch with you, some of my questions were answered.

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