What is Orchid doing?

Awareness

Orchid has a proactive education programme delivering awareness sessions to schools, businesses and the community and around 120 awareness events or talks a year are currently provided by the Orchid team. Orchid has produced a very popular informative Z-card combining a mixture of humour and testicular health and cancer awareness facts. 

Education

Orchid provides several publications for anyone who has been affected by testicular cancer including a comprehensive and popular information booklet, information on testicular cancer and fertility as well as testosterone replacement therapy.

Orchid has also created a one stop micro site  yourprivates.org.uk which contains downloadable information as well as a number of informative video clips where healthcare professionals and testicular cancer survivors discuss a number of issues. It also includes a downloadable school resource pack which is PSHE approved and can be used to teach children about testicular health and cancer awareness.

Support

Orchid provides a National Male Cancer Telephone Helpline for anyone worried or affected by male cancer. This is a free service and is staffed by Orchid Male Cancer Information Nurse Specialists. Orchid is also piloting a telephone testicular cancer counselling service for men who have been affected by testicular cancer. For more details on this please see here.

Research

Orchid funds a molecular biology and cancer genetics programme with a focus on identifying new genes associated with prostate and testicular tumour development and progression. It also funds the Orchid Tissue Bank, a collection of male cancer histopathology (cancerous tissue). The Tissue Bank has one of the largest collections of penile, prostate and testicular cancer tissue in Europe. The histopathology team collaborates with other genito-urinary research groups in the UK and the world including the Trans-Atlantic Prostate Group and conducts its own research into penile, prostate and testicular cancer. The Orchid tissue bank also supports studies which examine the potential causes and factors that are important in the development of cancer including lifestyle causes, so that we can try to prevent the disease occurring in the first place.

 

CarPET trial

Orchid is currently funding a clinical trial which is comparing BEP chemotherapy with high does carboplatin chemotherapy to treat seminoma. BEP chemotherapy may cause long term side effects which may be less with carboplatin. This study is also looking at the use of PET-CT scans to assess the response to treatment.

The main aims of this study are to:

  • Learn more about the safety and side effects of high dose carboplatin
  • See how well it works to treat seminoma
  • See if using PET-CT scans can help spot an early response to carboplatin better than standard CT scans, leading to fewer men needing 4 cycles of carboplatin

For more information on this trial please click here 

GAMMA trial

This is a trial looking at a combination of chemotherapy treatment for men whose testicular cancer has recurred. Men who have recurrent testicular cancer are usually treated with a combination of several types of chemotherapy actinomycin D, methotrexate, etoposide and cisplatin.The researchers of this trial have replaced etoposide and cisplatin with drugs called paclitaxel and oxaliplatin, which also work well in treating germ cell tumours and may have less side effects.

The aim of this study is to see if this combination works better and has fewer side effects compared with the standard approach.

For more information on this trial please click here

 

 

Last reviewed 26/1/17 Next review July 2017

 

References available on request.

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